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Erika F. H. Saunders

Publications and source records attributed to Erika F. H. Saunders.

2 recordsLinked to original sources

Assessing Acceptance and Privacy Preferences of Third-party Financial Data Sharing in Bipolar Disorder

Bipolar disorder is strongly associated with financial instability. We examine how different interventions motivate individuals with bipolar disorder to share financial data with others. This approach can inform the development of tools for digital monitoring and intervention designed to promote financial stability in this population. 500 individuals with BD completed a pre-registered factorial vignette survey to examine level of comfort with hypothetical scenarios involving third-party financial interventions during symptomatic and euthymic periods. Scenario components were systematically varied between third-party actors, mood states, and intervention types. Participants rated sharing comfort on a 0-10 point scale. Multilevel models tested differences alongside clinical and financial histories, relational trust, and personality. Participants were most comfortable involving care partners in financial planning. They were more comfortable with temporary spending restrictions during symptomatic states than euthymic periods, underscoring the importance of accurate mood detection for intervention delivery. Prior financial help-seeking behavior and higher relational trust predicted greater comfort. Bankruptcy experience --- declared by 11.4% and considered by 31.7% --- was associated with increased comfort with spending restrictions. Individuals with psychiatric advance directives (8%) were significantly more comfortable sharing spending behaviors than those without. Comfort with financial interventions was higher among those with prior financial challenges or help-seeking histories. Participants distinguished between symptomatic and euthymic periods, favoring targeted, time-limited restrictions over general monitoring. These findings extend prior work on financial data sharing for illness self-management.

cs.HC↗

Supportive Fintech for Individuals with Bipolar Disorder: Financial Data Sharing Preferences to Support Longitudinal Care Management

Financial stability is a key challenge for individuals living with bipolar disorder (BD). Symptomatic periods in BD are associated with poor financial decision-making, contributing to a negative cycle of worsening symptoms and an increased risk of bankruptcy. There has been an increased focus on designing supportive financial technologies (fintech) to address varying and intermittent needs across different stages of BD. However, little is known about this population's expectations and privacy preferences related to financial data sharing for longitudinal care management. To address this knowledge gap, we have deployed a factorial vignette survey using the Contextual Integrity framework. Our data from individuals with BD (N=480) shows that they are open to sharing financial data for long term care management. We have also identified significant differences in sharing preferences across age, gender, and diagnostic subtype. We discuss the implications of these findings in designing equitable fintech to support this marginalized community.

cs.HC↗