arXiv subjects

Fateme Rajabiyazdi

Publications and source records attributed to Fateme Rajabiyazdi.

15 recordsLinked to original sources

arXiv2026

Input Visualizations to Track Health Data by Older Adults with Multiple Chronic Conditions

Older adults living with multiple chronic conditions (MCC) can considerably benefit from collecting and reflecting on their health data. Many older adults collect their health data using various approaches, such as digital tools or handwritten notebooks. However, in these approaches, the act of collecting data does not itself yield insights; sensemaking and reflection happen only if individuals later review their accumulated records. The daily process of data collection thus offers limited opportunity for individuals to actively engage with their data or find the process personally meaningful and enjoyable. Personal data input visualizations using physical tokens offer a promising solution that can help individuals recognize evolving patterns while collecting data and discover meaningful insights more serendipitously and engagingly. Yet, there is a limited understanding of whether and how older adults living with MCC might adopt physical input visualizations to collect data and reflect on their health, and how the tangible, expressive, and personalizable nature of this process supports their sensemaking and reflection. In this paper, we present the results of our interview and diary studies in which older adults living with MCC inputted health data using physical tokens over two weeks. Our findings highlight the diverse and unique needs of older adults for tracking personal health data, illustrating how they adapt strategies and personalize physical input visualizations to align with their individual needs. We demonstrate how older adults integrated input visualizations into daily routines and leveraged tangible markers to reflect on patterns and behaviors, while enjoying the process of tracking and focusing on personal expression and meaningful reflection. Finally, we provide design considerations for supporting older adults with MCC when inputting health data through physical tokens.

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arXiv2026

Challenges in Working Towards Patient Engagement in Developing Technology Prototypes

Creating supportive technologies for people living with multiple chronic conditions is extremely challenging. These patients are often faced with substantial visible and invisible treatment work as well as their everyday responsibilities, including coordinating across providers, tracking information, and repeating communication in emotionally charged contexts. In the Cumulative Complexity Model (CuCoM), the balance between patient workload and patient capacity shapes what patients can realistically take on, including whether a digital tool can be adopted and sustained. In this paper, we report engagement lessons from implementing MyCareCompass, a patient-facing digital health intervention (DHI) intended to support day-to-day self-management for people living with multiple chronic conditions. We define engagement as patient uptake and sustained use during a two-month pilot study of our platform, drawing on usage analytics and follow-up feedback, and distill three implementation lessons for designing for engagement in complex chronic care.

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arXiv2026

Pulli Kolam: A Traditional South Indian Craft Practice for Representing Data

This paper introduces Pulli Kolam, a traditional South Indian craft, as a medium for physical data representation. Grounded in its cultural meaning and embodied practice, Pulli Kolam follows structured geometric rules while allowing creative variation. We identify five mapping strategies within Kolam (dots, patterns, fills, lines, and color) that can be used for representing data physically. without disrupting traditional practice. Through an illustrative scenario of daily well-being tracking, we demonstrate how data representation can be embedded within routine craft practice. We conclude by outlining potential material adaptations that extend Kolam beyond its ephemeral form while maintaining its embodied and ritual qualities.

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arXiv2026

Metacognitive Demands and Strategies While Using Off-The-Shelf AI Conversational Agents for Health Information

As Artificial Intelligence (AI) conversational agents become widespread, people are increasingly using them for health information seeking. The use of off-the-shelf conversational agents for health information seeking could place high metacognitive demands (the need for extensive monitoring and control of one's own thought process) on individuals, which could compromise their experience of seeking health information. However, currently, the specific demands that arise while using conversational agents for health information seeking, and the strategies people use to cope with those demands, remain unknown. To address these gaps, we conducted a think-aloud study with 15 participants as they sought health information using our off-the-shelf AI conversational agent. We identified the metacognitive demands such systems impose, the strategies people adopt in response, and propose considerations for designing beyond off-the-shelf interfaces to reduce these demands and support better user experiences and affordances in health information seeking.

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arXiv2025

AI-Enabled Conversational Journaling for Advancing Parkinson's Disease Symptom Tracking

Journaling plays a crucial role in managing chronic conditions by allowing patients to document symptoms and medication intake, providing essential data for long-term care. While valuable, traditional journaling methods often rely on static, self-directed entries, lacking interactive feedback and real-time guidance. This gap can result in incomplete or imprecise information, limiting its usefulness for effective treatment. To address this gap, we introduce PATRIKA, an AI-enabled prototype designed specifically for people with Parkinson's disease (PwPD). The system incorporates cooperative conversation principles, clinical interview simulations, and personalization to create a more effective and user-friendly journaling experience. Through two user studies with PwPD and iterative refinement of PATRIKA, we demonstrate conversational journaling's significant potential in patient engagement and collecting clinically valuable information. Our results showed that generating probing questions PATRIKA turned journaling into a bi-directional interaction. Additionally, we offer insights for designing journaling systems for healthcare and future directions for promoting sustained journaling.

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arXiv2024

Identifying Challenges in Designing, Developing and Evaluating Data Visualizations for Large Displays

With the growth of data sizes, visualizing them becomes more complex. Desktop displays are insufficient for presenting and collaborating on complex data visualizations. Large displays could provide the necessary space to demo or present complex data visualizations. However, designing and developing visualizations for such displays pose distinct challenges. Identifying these challenges is essential for researchers, designers, and developers in the field of data visualization. In this study, we aim to gain insights into the challenges encountered by designers and developers when creating data visualizations for large displays. We conducted a series of semi-structured interviews with experts who had experience in large displays and, through affinity diagramming, categorized the challenges.

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arXiv2024

Challenges and Opportunities of Teaching Data Visualization Together with Data Science

With the increasing amount of data globally, analyzing and visualizing data are becoming essential skills across various professions. It is important to equip university students with these essential data skills. To learn, design, and develop data visualization, students need knowledge of programming and data science topics. Many university programs lack dedicated data science courses for undergraduate students, making it important to introduce these concepts through integrated courses. However, combining data science and data visualization into one course can be challenging due to the time constraints and the heavy load of learning. In this paper, we discuss the development of teaching data science and data visualization together in one course and share the results of the post-course evaluation survey. From the survey's results, we identified four challenges, including difficulty in learning multiple tools and diverse data science topics, varying proficiency levels with tools and libraries, and selecting and cleaning datasets. We also distilled five opportunities for developing a successful data science and visualization course. These opportunities include clarifying the course structure, emphasizing visualization literacy early in the course, updating the course content according to student needs, using large real-world datasets, learning from industry professionals, and promoting collaboration among students.

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arXiv2024

Practical Challenges of Progressive Data Science in Healthcare

The healthcare system collects extensive data, encompassing patient administrative information, clinical measurements, and home-monitored health metrics. To support informed decision-making in patient care and treatment management, it is essential to review and analyze these diverse data sources. Data visualization is a promising solution to navigate healthcare datasets, uncover hidden patterns, and derive actionable insights. However, the process of creating interactive data visualization can be rather challenging due to the size and complexity of these datasets. Progressive data science offers a potential solution, enabling interaction with intermediate results during data exploration. In this paper, we reflect on our experiences with three health data visualization projects employing a progressive data science approach. We explore the practical implications and challenges faced at various stages, including data selection, pre-processing, data mining, transformation, and interpretation and evaluation. We highlighted unique challenges and opportunities for three projects, including visualizing surgical outcomes, tracking patient bed transfers, and integrating patient-generated data visualizations into the healthcare setting. We identified the following challenges: inconsistent data collection practices, the complexity of adapting to varying data completeness levels, and the need to modify designs for real-world deployment. Our findings underscore the need for careful consideration of using a progressive data science approach when designing visualizations for healthcare settings.

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arXiv2024

Co-Designing Unstructured Text Data Visualization Systems

We present our in-progress work on co-designing a visualization tool for presenting unstructured text. We have conducted a focus group with a variety of professionals who regularly analyze large corpora of unstructured text. Our preliminary insights indicate there is an unmet need to visually explore the dynamics between entities and actors extracted from unstructured text. Additionally, large corpora contain multiple perspectives on the same series of events. There is a need to disentangle these perspectives and visually show the multiple narratives present in the data. In our future work, we will co-design low-fidelity prototypes to create a broad consideration space of possible solutions for visualizing unstructured text.

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arXiv2024

Design and Development of PainBit: a Portable Device for Supporting Patients with Chronic Pain to Log their Pain

Recently, we have seen growing interest among patients with chronic conditions to track their health-related data. There are many wearable devices available to track different health data. However, tracking pain is mostly done by using pen and paper or mobile apps. In collaboration with a healthcare professional we designed a portable pain tracker, PainBit. To gain an understanding of patients' perspectives on our tracker, we conducted two case studies with patients living with chronic pain. We asked patients to use PainBit for two weeks and later conducted semi-structured interviews with them. Patients found PainBit useful for tracking their pain and they preferred using a physical device, PainBit, to track their pain over using a mobile phone. Patients suggested reducing the size and weight of PainBit in the next iterations. We report on the lessons learnt through our design process and the evaluation studies.

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arXiv2024

Designing interactive data visualizations representing recovery progress for patients after stroke

Stroke is one of the leading causes of disability worldwide. The efficacy of recovery is determined by a variety of factors, including patient adherence to rehabilitation programs. One way to increase patient adherence to their rehabilitation program is to show patients their progress that is visualized in a simple and intuitive way. We begin to gather preliminary information on Functional Capacity, Motor Function, and Mood/cognition from occupational Therapists at the Bruyere Hospital to gain a better understanding of how stroke recovery data is collected within in-patient stroke rehabilitation centers. The future aim is to design, develop, and evaluate a data visualization tool representing progress made by patients recovering from stroke.

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arXiv2023

Challenges and Opportunities in Data Visualization Education: A Call to Action

This paper is a call to action for research and discussion on data visualization education. As visualization evolves and spreads through our professional and personal lives, we need to understand how to support and empower a broad and diverse community of learners in visualization. Data Visualization is a diverse and dynamic discipline that combines knowledge from different fields, is tailored to suit diverse audiences and contexts, and frequently incorporates tacit knowledge. This complex nature leads to a series of interrelated challenges for data visualization education. Driven by a lack of consolidated knowledge, overview, and orientation for visualization education, the 21 authors of this paper-educators and researchers in data visualization-identify and describe 19 challenges informed by our collective practical experience. We organize these challenges around seven themes People, Goals & Assessment, Environment, Motivation, Methods, Materials, and Change. Across these themes, we formulate 43 research questions to address these challenges. As part of our call to action, we then conclude with 5 cross-cutting opportunities and respective action items: embrace DIVERSITY+INCLUSION, build COMMUNITIES, conduct RESEARCH, act AGILE, and relish RESPONSIBILITY. We aim to inspire researchers, educators and learners to drive visualization education forward and discuss why, how, who and where we educate, as we learn to use visualization to address challenges across many scales and many domains in a rapidly changing world: viseducationchallenges.github.io.

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arXiv2023

EduVis: Workshop on Visualization Education, Literacy, and Activities

This workshop focuses on visualization education, literacy, and activities. It aims to streamline previous efforts and initiatives of the visualization community to provide a format for education and engagement practices in visualization. It intends to bring together junior and senior scholars to share research and experience and to discuss novel activities, teaching methods, and research challenges. The workshop aims to serve as a platform for interdisciplinary researchers within and beyond the visualization community such as education, learning analytics, science communication, psychology, or people from adjacent fields such as data science, AI, and HCI. It will include presentations of research papers and practical reports, as well as hands-on activities. In addition, the workshop will allow participants to discuss challenges they face in data visualization education and sketch a research agenda of visualization education, literacy, and activities.

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arXiv2022

Reflections and Considerations on Running Creative Visualization Learning Activities

This paper draws together nine strategies for creative visualization activities. Teaching visualization often involves running learning activities where students perform tasks that directly support one or more topics that the teacher wishes to address in the lesson. As a group of educators and researchers in visualization, we reflect on our learning experiences. Our activities and experiences range from dividing the tasks into smaller parts, considering different learning materials, to encouraging debate. With this paper, our hope is that we can encourage, inspire, and guide other educators with visualization activities. Our reflections provide an initial starting point of methods and strategies to craft creative visualisation learning activities, and provide a foundation for developing best practices in visualization education.

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arXiv2021

Communicating Patient Health Data: A Wicked Problem

Designing patient-collected health data visualizations to support discussing patient data during clinical visits is a challenging problem due to the heterogeneity of the parties involved: patients, healthcare providers, and healthcare systems. Designers must ensure that all parties' needs are met. This complexity makes it challenging to find a definitive solution that can work for every individual. We have approached this research problem -- communicating patient data during clinical visits -- as a wicked problem. In this article, we outline how wicked problem characteristics apply to our research problem. We then describe the research methodologies we employed to explore the design space of individualized patient data visualization solutions. Last, we reflect on the insights and experiences we gained through this exploratory design process. We conclude with a call to action for researchers and visualization designers to consider patients' and healthcare providers' individualities when designing patient data visualizations.

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