Hugo Simão | Searcharxiv

arXiv2025

Can You Keep a Secret? Exploring AI for Care Coordination in Cognitive Decline

The increasing number of older adults who experience cognitive decline places a burden on informal caregivers, whose support with tasks of daily living determines whether older adults can remain in their homes. To explore how agents might help lower-SES older adults to age-in-place, we interviewed ten pairs of older adults experiencing cognitive decline and their informal caregivers. We explored how they coordinate care, manage burdens, and sustain autonomy and privacy. Older adults exercised control by delegating tasks to specific caregivers, keeping information about all the care they received from their adult children. Many abandoned some tasks of daily living, lowering their quality of life to ease caregiver burden. One effective strategy, piggybacking, uses spontaneous overlaps in errands to get more work done with less caregiver effort. This raises the questions: (i) Can agents help with piggyback coordination? (ii) Would it keep older adults in their homes longer, while not increasing caregiver burden?

cs.HC↗

arXiv2025

Unremarkable to Remarkable AI Agent: Exploring Boundaries of Agent Intervention for Adults With and Without Cognitive Impairment

As the population of older adults increases, there is a growing need for support for them to age in place. This is exacerbated by the growing number of individuals struggling with cognitive decline and shrinking number of youth who provide care for them. Artificially intelligent agents could provide cognitive support to older adults experiencing memory problems, and they could help informal caregivers with coordination tasks. To better understand this possible future, we conducted a speed dating with storyboards study to reveal invisible social boundaries that might keep older adults and their caregivers from accepting and using agents. We found that healthy older adults worry that accepting agents into their homes might increase their chances of developing dementia. At the same time, they want immediate access to agents that know them well if they should experience cognitive decline. Older adults in the early stages of cognitive decline expressed a desire for agents that can ease the burden they saw themselves becoming for their caregivers. They also speculated that an agent who really knew them well might be an effective advocate for their needs when they were less able to advocate for themselves. That is, the agent may need to transition from being unremarkable to remarkable. Based on these findings, we present design opportunities and considerations for agents and articulate directions of future research.

cs.HC↗