arXiv subjects

Ji Youn Shin

Publications and source records attributed to Ji Youn Shin.

6 recordsLinked to original sources

arXiv2026

Octo's Adventure: At-home Deployment of a Pediatric Education Tool

Children with congenital heart disease (CHD) and their families often navigate educational, emotional, and communication challenges regarding care management outside clinical settings. However, many pediatric health intervention studies rely on caregiver-mediated feedback or structured evaluations, limiting visibility into children's direct experiences during everyday use. We present a one-week at-home deployment study of Octo, a hybrid physical-digital educational tool designed to support children's health literacy and reduce parental educational burden. Extending participatory design approaches into deployment, the study embedded child-friendly reflection activities, drawing-based feedback, and emotional tracking into family routines. We conducted the deployment with 13 families of children diagnosed with CHD. Preliminary findings suggest that children gained understanding across Octo's physical and digital components, expressed emotional attachment and confidence through play, and engaged in collaborative family communication about their condition. These findings will guide future refinement of Octo and inform future clinical deployment across care settings.

cs.HC↗

arXiv2026

Growing With the Condition: Co-Designing Pediatric Technologies that Adapt Across Developmental Stages

Children with chronic conditions face evolving challenges in daily activities, peer relationships, and clinical care. Younger children often rely on parental support, while older ones seek independence. Prior studies on chronic conditions explored proxy-based, family-centered, and playful approaches to support children's health, but most technologies treat children as a homogeneous group rather than adapting to their developmental differences. To address this gap, we conducted four co-design workshops with 69 children with congenital heart disease (CHD) at a medically supported camp, spanning elementary, middle, and high school groups. Our analysis reveals distinct coping strategies: elementary children relied on comfort objects and reassurance, middle schoolers used mediated communication and selective disclosure, and high schoolers emphasized agency and direct engagement with peers and providers. Through child-centered participatory design, we contribute empirical insights into how children's management of chronic conditions evolves and propose design implications for pediatric health technologies that adapt across developmental trajectories.

cs.HC↗

arXiv2026

Designing Health Technologies for Immigrant Communities: Exploring Healthcare Providers' Communication Strategies with Patients

Patient-provider communication is an important aspect of successful healthcare, as it can directly lead to positive health outcomes. Previous studies examined factors that facilitate communication between healthcare providers and patients in socially marginalized communities, especially developing countries, and applied identified factors to technology development. However, there is limited understanding of how providers work with patients from immigrant populations in a developed country. By conducting semi-structured interviews with 15 providers working with patients from an immigrant community with unique cultural characteristics, we identified providers' effective communication strategies, including acknowledgment, community involvement, gradual care, and adaptive communication practices (i.e., adjusting the communication style). Based on our findings, we highlight cultural competence and discuss design implications for technologies to support health communication in immigrant communities. Our suggestions propose approaches for HCI researchers to identify practical, contextualized cultural competence for their health technology design.

cs.HC↗

arXiv2026

"It's More of a Lifestyle'': Design Considerations for Supporting Everyday Practices in Community-Based Farming

Farming plays a significant role in the economy by supporting related industries such as food, retail, and local services. Community-based small farms, while offering unique social and cultural benefits, face persistent challenges, including limited access to formal education and underdeveloped infrastructure, which have been discussed in prior research. This study focuses on community-driven factors, such as workarounds for recording critical information and practices for passing down farming knowledge across generations. Through 11 semi-structured interviews with farmers from a small ethnic community, the Hmong, we explore how bonding social capital, rooted in close family and community ties, supports informal knowledge exchange and creates pathways to bridging and linking capital. These relationships help farmers connect to broader networks, resources, and institutions. Our findings highlight opportunities for designing technologies that support and strengthen existing support systems. We discuss how technologies should be designed to reflect the cultural values, unique practices, and intergenerational relationships embedded in community-based farms.

cs.HC↗

arXiv2025

Octo's Heartland: Supporting Children with Congenital Heart Disease through Digital Health Education

Children with congenital heart disease (CHD) often face challenges that require them to understand complex medical information from an early age in order to support lifelong care and improve health outcomes. However, prior research has rarely included young children in designing and evaluating digital tools to support health education using developmentally appropriate strategies. This study is part of a multi-phase research involving participatory design (PD), user testing, and iterative development. We present the design and refinement of a digital application that introduces basic information about CHD, including heart anatomy and healthy habits, through metaphor-based gameplay. User testing sessions with 30 children informed the redesign of interactive activities aligned with specific health conditions. Findings highlight usability, engagement, and comprehension outcomes and reveal design opportunities for supporting health literacy through serious game (SG) principles. These results inform the next phase, including further testing, refinement, and deployment in home and clinical settings.

cs.HC↗

arXiv2025

"I Want My Chart to Be Just for Me": Community-Engaged Design to Support Outpatient Healthcare for Resettled Communities

Individuals resettled in a new environment often face challenges in accessing adequate healthcare services, particularly within the complex processes of outpatient clinic care. Cultural differences, language barriers, and low socioeconomic status contribute to these difficulties. While previous studies have identified barriers and proposed technology-mediated solutions for resettled populations, many focus on addressing deficits rather than building on the strengths these communities already possess, which limits the sustainability and relevance of these solutions in everyday life. We conducted two community-based participatory design workshops with 30 Hmong community members in a large metropolitan area in the US. Through this process, we identified four types of assets the community has gradually developed, including intergenerational support for health management and storytelling-based communication practices that facilitate relatable and culturally grounded interactions. We show how participatory design workshops can foster asset-based approaches, and discuss design implications for technologies that leverage patients' existing strengths to support their health management during outpatient visits.

cs.HC↗